How did you make the decision to have your child participate
in the program?
Actually we never even knew such a program existed. A few months after
Devin was born, we could tell he was not developing like a normal baby
his age. He didn't crawl until he was almost one, started walking at 1
1/2, and his speech was slow at coming. Everything seemed to be a challenge
for him. We were taking him to several different doctors and specialists
for answers but they were always the same. They could find nothing wrong
with him and told us to let him alone and he would be fine. This answer
was not acceptable to us. We just knew something was wrong. Finally after
several tests and even a CAT Scan coming out negative, we decided to take
a different direction for help. A friend of ours suggested that we take
Devin to Heart Spring, a place that specializes in children with special
needs. After being tested at Heart Spring, we were told that Devin really
did have some special needs and he was entered into their program. He
was seen by a therapist twice a week for 30 minutes for OT and speech
therapy. We were truly amazed at the progress he made here with his speech.
But after being here for almost 2 years, Devin started to become bored
with the program. He used to cry each time he had to go and started refusing
to cooperate with the specialists. We felt like we had hit a plateau with
him in this program. Since he was now reaching Preschool age, his therapist
suggested that we contact the Special Education Office in the Wichita
School System and see what they had to offer. After much cooperation from
their office and some more testing, we were told that our area school
had a program that we should check into. And the rest is history. The
White Elementary Staff did some testing on Devin and he was enrolled into
their program. At the time we started with them, I had no idea as to the
time these people would be putting in to help my child. We feel it was
a miracle and the grace of God that helped us to find such a program.
We were very fortunate and are extremely thankful to this day.
How have you been able to give input into how your child's needs
are met?
The very first IEP meeting that I attended, I was shocked to see just
how much paperwork and planning was being done. Here we were discussing
our fears, strengths, and wants for Devin. We were setting goals and
the amount of time that we wanted it to take for him to achieve them.
They were listening to everything I had to say. They never once thought
our hopes and dreams for Devin were unreachable. I looked forward to
these meetings because of all the new ideas that they were coming up
with. Any time during the year that I may have had a concern or a question,
all I had to do was ask any one of his teachers. It was interesting
to go to these meetings each time because even though we were very aware
of Devin's progress, he was reaching goals that we at home had no idea
he could do. So each time I went with anticipation and excitement to
see what he had learned that I didn't know he had. We always felt that
our input was encouraged.
Who are the ongoing participants on your child's IEP team?
Joan - School Psychologist
Cindy - Principal
Jennifer - Teacher
Robin - Teacher
Jeanne - Social Worker
Angela - Nurse
Anita - ECSE Teacher
Chelie - Speech and Language
Debra - OT
How are you communicated with on a daily or weekly basis?
His OT teacher sends home a report every time she works with Devin,
which is once a week. She lets me know what they worked on that day
and how well he responded. She lets me know his frustrations and his
accomplishments. Sometimes she will give suggestions on what we can
do at home. She also lets me know his attitude towards his therapy on
that day. Since I'm not there, I look forward to these notes to see
how he is coming along. I have received phone calls from her and have
even been invited to sit in on some sessions to learn some of the exercises
being used to strengthen Devin's hands. This teacher has also sent home
endless worksheets for him to practice on. This way we can continue
his therapy at home, especially during the summer.
His other teachers send home a newsletter each Monday as to what they
will be learning in class for the week. If ever they have a suggestion
or concern, I always know they will contact me either through a note
or a phone call. Devin brings home at least 3 papers each day and several
times it will have a special note attached if he has accomplished something
extra special on his own. This is really neat as I can see the excitement
on the teachers' faces when this happens. The teachers have even gone
out of their way to laminate the alphabet and numbers for us to work
on at home. They have also sent home numerous worksheets and books that
they think might be of help. They're always passing on information they
receive.
How has the program benefited your child?
Before Devin entered White Elementary, he was testing along the line
of a 1 1/2 year old even though he was 4. A few weeks ago he was tested
and is along the line of a 5 to 5 1/2 year old and is now 6. I think
this speaks for itself. He is a totally different little boy. He is
outgoing now and loves to learn. He looks forward to going to school
every day. Everyday I pick him up from school, he goes on and on about
what he learned and did that day. He is now writing his name, words
and sentences. He knows all his letters and some numbers, things that
didn't make sense before. He doesn't give up like he did before. It
is extra encouraging when people who haven't seen Devin for awhile,
comment on how much he has improved since the last time they had seen
him.
Does your child have a special friend?
Devin has 3 special friends. My parents have always been very special
to him and he is very close to them. We see them at least twice a week
and each time Devin begs to stay with them. My mom always knew that
he needed extra help and care and so she kind of took him under her
wing. And to this day they still help him with his letters or writing
when they come. A few years ago my dad had a serious illness and still
has some side effects. Devin is always trying to help him put on his
shoes, button his shirt, or taking him for his walks. He is always by
my dad's side. If my dad is going to the field, Devin is next to him
in the tractor. He constantly talks about his "Papa". There is a definite
bond between them.
His third special friend is his teacher, Jennifer. He thinks the world
of her. Each day I take him to school he looks for her car and when
he sees it, his eyes light up and he gets the biggest smile on his face.
If we are with a group of people, he always tells people about her.
When he plays at home, she is always a part of the game. We constantly
hear her name from him. It's nothing for him to come and tell us how
he is going to give her a big hug the next day. Each day he wakes up
he asks if he's going to see her. We feel she is our "special angel"
from Heaven.
What advice would you give to other parents in placing their children
in inclusive programs?
Consider yourself very lucky. There aren't very many schools who are
doing this program. This program will give those students with special
needs all the help and support they need at that same time they are
able to interact with their peers. You need to be totally involved with
your child in the program. You will not believe the difference this
will make. All the extra work and support of the teachers should be
rewarded with the total support and involvement from the parents. This
program works. If you've been searching for that extra helping program,
this is it! Don't let anyone tell you that you're overreacting. You
know your child. Keep searching for the inclusion program. It's an amazing
program.
To what extent do you feel involved in the overall program?
I feel as if I'm right beside him everyday at school. Not a day goes
by that I don't get some information about his progress whether it be
by word of mouth or just a piece of paper. The feeling you get knowing
that your child is learning and doing exactly what he needs to be doing
is an awesome one. Having a program like this with all the extras helps
me as a parent get rid of some of that guilt wondering if it may have
been something you did wrong as to why they have special needs. This
program gives such support to parents. I know anytime I have a question
or concern all I have to do is call or meet with the teachers and I
leave feeling satisfied. I can tell you what Devin is learning everyday
and just about what level he is on and what he needs extra help with.
This comes from such great open communication lines through this program
with the teachers. It is great to walk down the halls and have a teacher
come running up all excited about something special your child has achieved.
We all need an extra pat on the back at times!
How do you feel your child is benefiting from the inclusive aspect
of the program?
The inclusion part is one of the most important parts of this program
to me. Before Devin started this program, he just kind of went with
the flow. If his sister took a toy from him, he just got another one.
If his sister hit him, he wouldn't respond. He never cared to join in
on games with others, never "rough housed" with his brother, and most
of the time, never joined in on conversations. It was like he didn't
know how to become involved. He is a totally different little boy after
being in this program. Now he hates being left out of anything. He tries
very hard to keep up with his peers and wants to do everything they
are doing. How refreshing it was the first day I went into his classroom
and saw him raising his hand to answer a question. Now he comes running
to the car after school and can't wait to tell or show us what he did
that day. He talks about his friends constantly. He doesn't have any
idea that he is different from the other children. And the other children
love the responsibility of helping Devin. If he isn't sitting where
he is suppose to be, they let him know about it. You can tell by the
look on his face that he is just a normal little boy growing up and
learning with his peers. And the satisfaction that I feel in my heart
is unexplainable.
I always remember growing up and going to school. The special education
students were always in a classroom by themselves and whether we had
a program or assembly all together, they were always kept in their own
little group. There was absolutely no interaction with other students.
And to this day when I go home, you can still see these same people
being together. And they haven't thrived the way that I know they could
have with a little bit of extra help and support. And this is why it
was so important for us to have Devin in the inclusion part of the program.
I know everyone has the same opportunities in life, some of us just
have to work harder. And I truly believe that some kids can and will
be able to overcome being a special education student. My dream some
day is to have Devin back into the classroom learning on the same level
as his peers. Some people will tell you that once your child is in special
education they will always be there. I have seen how well the inclusion
part has worked for Devin and how he has matured in these past three
years. I also believe that "if you lose your dreams you die". And I
know as long as there are inclusion programs available, we will some
day beat these special needs.
Have you had any concerns? If so, how have these concerns been
addressed?
As a matter of fact, my biggest concern has happened just recently.
White Elementary that Devin attends now is just preschool through first
grade. Since Devin will be going into the second grade next year we
have to find him a new school. How shocked I was to find that not very
many schools have the inclusion program. We have worked too hard and
too long to back track now. I immediately went to a meeting and voiced
my concern to the IEP team and immediately they had the ball rolling.
They were on the phone to schools, trying to locate the ones doing inclusion.
I have since visited over four schools and think I have found a school
that I pray will be another "White Elementary". Each time I went to
visit a school one or two of Devin's IEP teachers would go with me and
help me to ask questions. Once again I was never alone or just on my
own. The support system through this program and school is beyond words.
My family has truly been blessed with the support from the teachers
at White Elementary. They have all become a part of our lives. I've
seen first hand what this program can do for special education students.
I only have a heavy heart for those parents who are out there that feel
they have no hope or no one to turn to. I think of those children who
could really excel if only given the chance to participate in the inclusion
program. Once again, parents need to get involved and don't take no
for an answer. There are "Angels" out there just like the ones we found
at White that will forever have an impact on Devin and our lives. My
dreams are to come back to White someday and congratulate each and every
one of the teachers and show them what a successful life Devin has made
for himself